Jobgether
Accountabilities:: Serve as the key regional point of contact for an ultra-rare disease patient support program, engaging patients, caregivers, healthcare providers, and other stakeholders to create a coordinated and seamless experience. Develop and maintain trusted, long-term relationships with patients, caregivers, and healthcare providers to support therapy initiation and adherence. Educate patients, caregivers, and healthcare professionals on disease state, approved product materials, insurance navigation, treatment access, and infusion logistics. Partner with patients, caregivers, healthcare providers, treatment centers, specialty pharmacies, and payers to navigate coverage, reimbursement, and access barriers. Connect patients and caregivers with appropriate financial assistance programs and other available support resources throughout their treatment journey. Maintain strong knowledge of the relevant rare disease and MPS therapy area, patient and community needs, support resources, and national patient access dynamics. Represent the patient support program at local and national advocacy events and develop or facilitate educational programs using approved materials. Monitor program operations, promote team alignment, and maintain effective communication with internal and external stakeholders. Support the development and maintenance of operational processes and technologies covering patient engagement and case management activities. Collaborate on stakeholder training and ensure activities remain aligned with applicable compliance standards and approved content. Partner with Account Leads, Market Access, Medical Affairs, Patient Advocacy, Compliance, and other teams to align program execution and incorporate field insights into broader strategy. Identify opportunities for continuous improvement and implement enhancements based on feedback from patients, caregivers, and healthcare providers. Serve as a subject matter expert on access processes, healthcare systems, insurance plans, patient support services, and operational elements of the patient experience program. Requirements Bachelor’s degree required; a life sciences field is preferred. Typically requires 12+ years of related experience with a Bachelor’s degree, 10+ years with a Master’s degree, or 7+ years with a PhD. Relevant experience supporting patients in pharmaceutical or healthcare settings, case management, social work, or a related field. At least 3 years of experience in a patient support program, integrated healthcare provider environment, or managed care setting is desired. Experience in rare disease, pediatrics, and/or complex therapies is preferred. Demonstrated commitment to patient-centricity and delivering a strong customer experience. Experience with field-based patient engagement using approved materials and working within regulatory guidelines is preferred. Proven ability to build trust with patients, caregivers, and healthcare professionals through empathetic listening and thoughtful communication. Strong ability to explain complex healthcare and treatment topics clearly using approved educational materials and ensuring understanding. Experience developing and delivering patient education programs, including navigating internal review processes, is preferred. Strong knowledge of government and commercial payers, including experience addressing access and reimbursement challenges within complex insurance environments. Ability to work effectively in a matrixed organization, balancing independent ownership with strong cross-functional collaboration. Excellent problem-solving, communication, relationship-building, and collaboration skills. Spanish-language proficiency is preferred. Willingness and ability to travel as required. Comfortable working remotely, with a preference for candidates located within the assigned geographic region. Benefits Base salary range of $159,000–$207,000, depending on qualifications, skills, competencies, experience, and other relevant factors. 401(k) plan. Healthcare coverage. Employee Stock Purchase Plan (ESPP). Broad range of additional benefits as part of the total rewards package. Remote work within the United States. One-year term position. Opportunity to contribute to patient access and support within a specialized healthcare environment. Collaborative and inclusive work environment focused on patient-centered impact. How Jobgether works: We use an AI-powered matching process to ensure your application is reviewed quickly, objectively, and fairly against the role's core requirements. Our system identifies the top-fitting candidates, and this shortlist is then shared directly with the hiring company. The final decision and next steps (interviews, assessments) are managed by their internal team. We appreciate your interest and wish you the best! Why Apply Through Jobgether? Data Privacy Notice: By submitting your application, you acknowledge that Jobgether will process your personal data to evaluate your candidacy and share relevant information with the hiring employer. This processing is based on legitimate interest and pre-contractual measures under applicable data protection laws (including GDPR). You may exercise your rights (access, rectification, erasure, objection) at any time. #LI-CL1