Jobgether
Accountabilities:: Deliver accurate, empathetic, and accessible information to patients and caregivers regarding disease progression, symptoms, unmet needs, treatment expectations, and available resources for DMD and SMA. Empower patients and caregivers with practical knowledge and tools to better understand and navigate their disease journey, using approved educational materials, resources, and talking points. Provide education on the benefits, appropriate use, and potential side effects of relevant branded products while adhering strictly to approved materials, regulatory requirements, and established guidelines. Develop and maintain strong relationships with local patient advocacy chapter leaders and community organizations, serving as a trusted educational resource and consistent point of contact. Represent the organization at patient and community events across the country, hosting educational tables, engaging with families, answering questions, and delivering presentations, with many events taking place on weekends. Respond to virtual inquiries from patients and caregivers through phone and email, and facilitate virtual educational meetings with advocacy leaders and local communities during weekdays, evenings, or weekends as required. Capture and communicate insights from patients, caregivers, and advocacy stakeholders to cross-functional teams, helping identify educational gaps and improve materials, presentations, resources, and broader patient-support strategies. Maintain appropriate documentation of patient and caregiver interactions and feedback, while following all requirements related to adverse event identification, training, reporting, compliance, and outcomes tracking. Participate in internal business reviews, functional planning, tactical planning, budgeting activities, and other required meetings, including the preparation of relevant materials. Maintain proficiency with required business platforms and processes, while keeping current scientific knowledge across relevant products, therapeutic areas, gene therapy, and neuromuscular diseases. Operate in accordance with applicable policies, professional standards, laws, regulations, and codes of conduct, ensuring that all patient and product education activities meet required compliance expectations. Requirements: Hold a bachelor’s degree in healthcare, education, social work, genetic counseling, or a related field, with at least 5 years of experience in patient education, pharmaceutical, healthcare support, or a closely related environment. Be bilingual in Spanish and English, with exceptional written and verbal communication skills and the ability to connect effectively and empathetically with diverse patient, caregiver, and community populations. Demonstrate experience presenting complex information in a clear, engaging, and accessible manner, including confidence delivering presentations to live audiences. Be willing and able to travel up to 70% of the time, including required weekend travel, and live within practical proximity to a major airport. Bring experience working within regulatory and compliance frameworks in healthcare, pharmaceutical, or similarly regulated environments. Be comfortable using virtual education and communication tools, including video conferencing and webinar platforms, and demonstrate the creativity needed to develop engaging educational approaches. Demonstrate strong leadership, influencing, collaboration, and stakeholder-management capabilities, with the ability to motivate and work effectively with others in a matrixed organization. Bring financial or budget-management experience and the ability to contribute to tactical planning and resource decisions. Demonstrate strong organizational skills and the ability to manage multiple priorities, stakeholders, events, and educational activities in a highly mobile role. Experience in neuroscience, neuromuscular therapies, gene therapy, or rare diseases is desirable. Benefits: Annual salary range of $152,600–$283,400 USD, with final compensation determined by factors including relevant skills and experience. Performance-based cash incentive opportunity. Eligibility for annual equity awards depending on the level of the position. Comprehensive U.S. benefits package including health, life, and disability benefits. 401(k) plan with company contribution and matching. Generous time-off package including vacation, personal days, holidays, and other applicable leaves. Opportunity to make a direct impact on patient and caregiver education within the DMD and SMA communities. Extensive exposure to patient advocacy, healthcare education, cross-functional strategy, and specialized therapeutic areas. Remote work arrangement within the eligible Central U.S. region, including PA, OH, WV, KY, TN, MO, AR, MS, AL, and FL, subject to applicable legal-entity restrictions. No relocation support is provided for this position. How Jobgether works: We use an AI-powered matching process to ensure your application is reviewed quickly, objectively, and fairly against the role's core requirements. Our system identifies the top-fitting candidates, and this shortlist is then shared directly with the hiring company. The final decision and next steps (interviews, assessments) are managed by their internal team. We appreciate your interest and wish you the best! Why Apply Through Jobgether? Data Privacy Notice: By submitting your application, you acknowledge that Jobgether will process your personal data to evaluate your candidacy and share relevant information with the hiring employer. This processing is based on legitimate interest and pre-contractual measures under applicable data protection laws (including GDPR). You may exercise your rights (access, rectification, erasure, objection) at any time. #LI-CL1